SNAP Oakville - 2012 Halton Region Walk for Muscular Dystrophy
More than 90 participants from the Oakville area took part in the 2012
Halton Region Walk for Muscular Dystrophy on Sunday May 6th.
Participants had the choice between a 1k or 5k walk which took them
through beautiful Coronation Park. This year, the fundraising goal was
to raise at least $14,000 for Muscular Dystrophy of Canada which would
use these funds for research. Participants were treated to coffee,
snacks and pizza. There was also a prize raffle, silent auction and
Cobbs Bread was at the event as a sponsor. Notable participants include
“Team Ma’am” who had handmade event jerseys and where ready to walk for a
good cause. Muscular Dystrophy is a group of muscle diseases that
weaken the musculoskeletal system and hamper locomotion. Muscular
Dystrophies are characterized by progressive skeletal muscle weakness,
defects in muscle proteins, and the death of muscle cells and tissue.
More 80 people in the Halton area are affected by Muscular Dystrophy.
Friday, June 1, 2012
SNAP Oakville - Lick's Burger Day- Halton Walk for Muscular Dystrophy
SNAP Oakville - Lick's Burger Day- Halton Walk for Muscular Dystrophy
Lick's Burger Day where $1 from every beef or nature burger went to support Muscular Dystrophy Canada. Bronte Lick's is raising awareness for the 3rd Annual Halton Region Walk for Muscular Dystrophy that will be held on Sunday May 6th. Visit www.muscle.ca for more details.
Lick's Burger Day where $1 from every beef or nature burger went to support Muscular Dystrophy Canada. Bronte Lick's is raising awareness for the 3rd Annual Halton Region Walk for Muscular Dystrophy that will be held on Sunday May 6th. Visit www.muscle.ca for more details.
Monday, May 7, 2012
Thank you for a Great Walk 2012
What an amazing kick off to the 2012 Walk for Muscular Dystrophy season!
The Halton Walk for Muscular Dystrophy took place at Coronation Park, Oakville Sunday May 6th, and a fun
time was had by all! Families, friends, teams, co-workers, class
mates and dogs came out to raise awareness for this great cause! We want to thank you very much for coming out and supporting and helping out at
the MD Walk If it weren't for all of you volunteering your time, I don't think
we could have had the success we did!! Amazing!!
Our most recent numbers for dollars raised. Please check back for final amount in the next coming days.
Stephanie Fenyes, revenue development coordinator for the Muscular Dystrophy Canada said they expect to raise about $13,000 at this event.
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| Roger The Clown |
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| Volunteers with Rita Carrey |
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| COBS Bread |
Top Fundraisers
- Diana D’Agostino
- Louise Dean
- Kristina Stephenson
- Julie Edwards
- Shanna Bernacki
Top Teams
- THROUGH ETHEN’S EYES
- Team Ma’am
- Bill’s Team
- Stepking
A Big Thank you to our 2012 Local Sponsors
- Transformation Hair and Aesthetics
- Sarah Ritchie,BA, RMT, Dipl.Ac. Registered Massage, Shiatsu and Acupuncture at The Root of Health
- Roger Clown
- Herridges Fruit Market
- Sobey's (Maple Grove Plaza, Oakville)
- Costco (Mississauga)
Shanna Bernacki is the 2012 Halton Region Walk for Muscular Dystrophy Ambassador. The event was held May 6, 2012.
Monday, April 30, 2012
Thursday, April 26, 2012
Muscles Needed For Walk For Muscular Dystrophy
Apr 25, 2012 Oakville Beaver
On Sunday, May 6 Halton residents will be moving their muscles to make an impact in the fight against muscular dystrophy.
The community will be joining together for the annual Halton Region
Walk for Muscular Dystrophy to support more than 50,000 children, teens
and adults who are affected by neuromuscular disorders in Canada.
Leading the Halton Region event will be this year’s Walk Ambassador
Shanna Bernacki, of Burlington, who knows firsthand how important this
community event is to families affected by muscular dystrophy.
“It’s nice to meet other people taking part in the walk that are
going through the same as me and being able to share experiences. It
gives me the sense… that I’m not alone,” said Bernacki, who was
diagnosed with Friedreich’s Ataxia (a rare disease affecting the heart
and muscles) at the age of nine. Muscular dystrophy refers to a group of progressive muscular disorders that weaken the muscles that control body movement.
These disorders can have devastating affects, resulting in the loss of most abilities we take for granted. Over time, many people with neuromuscular disorders are unable to walk, speak or even breathe. For some, the disorder is fatal.
The Walk for Muscular Dystrophy is “an opportunity for the community
to come together and support those affected by neuromuscular disorders
at the local level,” said Stacey Lintern, Muscular Dystrophy Canada
Ontario executive director.
The walk is a fun-filled, fully-accessible event the entire family can enjoy, regardless of fitness level.The event will include activities for kids, food and refreshments, a
prize raffle and silent auction, and even a visit from local
firefighters.
Proceeds from the event support various programs including funding
equipment and support services for individuals and families faced with
financial hardships, information and advocacy initiatives that highlight
the needs of those living with neuromuscular disorders, and fund
research to one day find a cure.All of Muscular Dystrophy Canada’s programs are made possible by
donations. The organization receives less than one per cent in
government funding.
Festivities will be taking place on Sunday, May 6 at Coronation Park.
Participant registration begins at 10 a.m. and the walk, wheel and roll begins at 11 a.m. To take part in the Halton Region Walk for Muscular Dystrophy or for more information, visit www.muscle.ca/walk.
Thursday, April 12, 2012
A Lick's Burgar Day
The Halton Walk for Muscular Dystrophy is setting up "A Lick's Burgar Day" on Saturday, April 28 from 11:00am to 5:00pm at Bronte Licks 2420 Lakeshore Rd W, Oakville, ON and $1 from every beef or nature burger will go to Muscular Dystrophy!
We will be spreading the word about MD and raising awareness for the 3rd Annual Walk for MD, May 6th at CoronationPark, Oakville.
We will be located right at the front of the restaurant. So please
drop by, enjoy some family time and remember $1 goes towards MD Canada.
3rd Annual Halton Region Walk for Muscular Dystrophy
Sunday, May 6, 2012 Corontation Park, Oakville
Sunday, May 6, 2012 Corontation Park, Oakville
ONLINE REGISTRATION http://
Let us know you will be attending here on Facebook as well as our EVENTBRITE PAGE http://
Tuesday, March 13, 2012
Halton Walk for Muscular Dystrophy
Last year the Walk for Muscular Dystrophy raised over $1,080,000 in 55 locations across Canada. In 2012, we will celebrate the 5th annual Walk for Muscular Dystrophy as our national signature fundraising event in support of Canadians affected by neuromuscular disorders.
Help make a difference by registering for the Halton Region Walk for Muscular Dystrophy at http://www.muscle.ca/walk and help raise funds to support those living with a neuromuscular disorder in your community.
We are excited that Rita Carrey is joining us as as the Honorary Chair for the 2012 Halton Region Walk for Muscular Dystrophy from Giant FM Classic Rock
PSA from Global Toronto featuring Anthony Farnell...have you seen this on Global TV yet?
For more information or if you would like to get involved in the Planning Committee, please contact us at: walkformusculardystrophy.on@muscle.ca
Together, we can Make Muscles Move!
Make your own slide show at Animoto.
Monday, March 5, 2012
Pickering Students Raise $19K in Memory of Mitchell Wilson
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Mitchell Wilson, who suffered from muscular dystrophy, took his own life last September after he was bullied by students at his Pickering school. Students throughout Pickering raised more than $19,000 in his memory for other children who suffer from muscular dystrophy. |
Pickering students amazed even themselves when they handed over a
cheque for more than $19,000 to help local kids suffering from muscular
dystrophy.
Their charity, I Am Who I Am, was
created only four months ago by a group of students at Pine Ridge
Secondary School in memory of Mitchell Wilson, an 11-year-old boy who
suffered from the disease and tragically took his own life last fall
after he was bullied.
The project has since been adopted by
all 19 schools in the Pickering public board, and sells t-shirts and
wristbands to promote acceptance in schools and raise money for cancer
research and muscular dystrophy.
The group’s original goal was to
raise $10,000 to buy one wheelchair. But after meeting with Muscular
Dystrophy organizations — and surpassing that goal in just one month —
the group realized they could make an even bigger difference.
Students handed over a cheque on
Friday for almost twice that — $19,341.48 — to Muscular Dystrophy
Canada, with funds going to seven local families with children suffering
from the disease.
“Everybody was happy to see that
within four months we’ve changed people’s perception of one another,”
said student leader and Pine Ridge Grade-12-student Cody Morrison. “And
we’ve raised a lot of money along the way that’s going to help a lot of
people.”
Their green “I Am Who I Am” t-shirts
have been donned by the likes of Defence Minister Peter MacKay, Premier
Dalton McGuinty — and one even made it to the top of Mount Kilimanjaro. Morrison, 18, said their charity got a
nod at the provincial Legislature by MPP Joe Dickson, and at the House
of Commons by MP Chris Alexander.
“Once you accomplish something like that the feeling is pretty indescribable,” Morrison said. Pine Ridge Principal Debbie Johnson said everyone at the ceremony Friday was touched and emotions were high at the school.
Mitchell’s father, Craig Wilson, was
there to present a plaque to the association in memory of Mitchell on
behalf of the Pickering schools.
Mitchell took his own life in
September after he found out he would have to testify in court against a
fellow student who’d allegedly assaulted and robbed him while he was
out on his daily walk to maintain his mobility skills.
A verdict in the case is expected on Monday.
Tuesday, January 10, 2012
2012 Halton Region Walk for Muscular Dystrophy
About the Walk for Muscular Dystrophy
The Walk for Muscular Dystrophy is Muscular Dystrophy Canada’s national signature event held in over 55 local communities across the country. In 2012, 15 Walk for Muscular Dystrophy events will be taking place in Ontario.
The Walk for Muscular Dystrophy is a family fun event that helps raise funds to support those living with a neuromuscular disorder in your community. Funds raised will support Muscular Dystrophy Canada’s mobility equipment program, education, research and advocacy initiatives and fund ground breaking research to one day find a cure.
Did you know?
More than 50,000 Canadians are affected by neuromuscular disorders.
There are more than 160 neuromuscular disorders under the umbrella of muscular dystrophy, which refers to a group of genetic muscle disorders that are characterized by progressive weakness and wasting of the voluntary muscles that control body movement.
Children, teens and adults who live with these disorders gradually lose the ability to do most things we take for granted, like walking or getting up from a chair.
Muscular dystrophy can also lead to shortened life expectancy. Currently there is no cure.
There are more than 75 people affected by a neuromuscular disorder living in Halton Region.
2012 Halton Region Walk for Muscular Dystrophy
What: 1k or 5k walk, wheel, roll or run!
When: Sunday, May 6th, 2012
Where: Coronation Park in Oakville, Ontario
Time: Registration opens at 10 a.m., walk begins at 11 a.m.
For more information on how to get involved, please visit www.muscle.ca/walk
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| Halton Region Walk for Muscular Dystropy - Coronation Park Oakville Ontario |
Saturday, November 5, 2011
Amazing Race to support boy and those with DMD
While some donors are sometimes skeptical if their charitable dollars are really making an impact, a young Oakville boy with Duchenne Muscular Dystrophy (DMD) is living proof that a local fundraiser is indeed making a difference, close to home.
Dianne Cornish, Flamborough Review- Oct 27, 2011 - http://www.insidehalton.com/
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Amazing Race to support boy and those with DMD. RAISING HELP: Pictured is Eric Morden (centre) who is living with Duchenne muscular dystrophy, flanked by his aunt and uncle Ted Lindsay and Heather Johnston. Submitted photo |
While some donors are sometimes skeptical if their charitable dollars are really making an impact, a young Oakville boy with Duchenne muscular dystrophy (DMD) is living proof that a local fundraiser is indeed making a difference, close to home.
Eleven-year-old Eric Morden is past the age where most afflicted with the disease are unable to walk and yet, he continues to walk with the help of medications. This year, he was chosen to be part of a major double blind study for boys with DMD.
“The fact that this test is available in London (Ontario) can be directly linked to Jesse’s Journey and even some of the research dollars raised by Eric’s Amazing Race,” said Burlington resident Ted Lindsay, Eric’s uncle and advertising manager at a Metroland newspaper. “To quote Jesse Davidson, ‘people should work together to make research happen because when people work together miracles happen,’” he added.
Lindsay and his wife, Heather Johnston, founded Eric’s Amazing Race, a local car rally and silent auction, after learning of their nephew’s diagnosis with the disorder in November 2002. Rather than accept the news passively, they decided to face it head-on by organizing a fundraiser in support of research into the disorder characterized by muscle degeneration, loss of ambulation and eventually death.
The rally that runs along north Flamborough and Burlington roads when the autumn colours are at their prime seemed like the perfect event to support the cause as research into a cure is indeed a race against time.
The ninth annual Eric’s Race will be held Saturday, Nov. 5, starting about 1 p.m. at Bruce T. Lindley School, 2510 Cavendish Dr. in north Burlington and ending at the Waterdown Legion, where the auction will be held from 3 until 7 p.m.
Registration of race participants will start at the Burlington school at noon. The cost is $10 per person.
Last year’s turnout for the rally was a record, with 40 cars registering, representing a total of 120 participants. Most years, the rally attracts about 30 cars or 100 participants.
Over the past eight years, the event has raised more than $120,000, with all funds going to Jesse’s Journey, a charitable organization that raises funds for research into DMD and gene and stem cell therapies.
The foundation is named after Jesse Davidson, a London man who lost his life to DMD at age 29, just the day before the 2009 race. For more information, visit online at www.jessesjourney.com.
“It’s a very family-friendly event,” Lindsay said of the rally and auction while lauding the support that he and his wife get every year from family and friends.
The auction, which drew close to 500 guests last year, features about 200 items donated by local businesses and individuals, including everything from tickets to Hamilton Bulldog games or the Ontario Science Centre to gift certificates and sports memorabilia. This year, several pieces of equipment autographed by hockey great Mario Lemieux will be up for auction.
Also new this year will be live entertainment by Semitone, a Burlington-based band composed of two acoustic guitar players who will entertain the crowd with classic rock.Lindsay said those who come out to support Eric’s Amazing Race can be assured that their support is having an impact.
“Literally, every dollar makes a difference, ” he said, adding that he’s convinced that research into the disorder has enabled his nephew to remain agile and mobile rather than bound to a wheelchair.
“He’s living it and he’s beating it, and that’s pretty cool,” he said of Eric’s battle with DMD.
According to Rick Moss, managing director of Jesse’s Journey, Eric and other boys are involved in a 52-week double blind study headed up by Dr. Craig Campbell at the Children’s Hospital in London. Eric gets shots there every week to help with muscle regeneration.
Moss said the study will prove helpful for those suffering from other neuromuscular diseases, such as ALS (Amyotrophic Lateral Sclerosis) and MS (Multiple Sclerosis). He added that funds raised at Eric’s Amazing Race have been a great support for research and trials that are helping improve the lives of close to 2,000 boys afflicted with DMD across Canada.
For more information about the fundraiser or to make a donation either to Jesse’s Journey or the auction, please contact Lindsay at 905-331-6874
Wednesday, September 7, 2011
September begins Muscular Dystrophy Canada’s Awareness campaign.
September begins Muscular Dystrophy Canada’s Awareness campaign. Over 50,000 Canadians are affected by a neuromuscular disorder. Some basic facts about Muscular Dystropy.
Muscular Dystrophy Canada is a not-for-profit organization committed to finding a cure for neuromuscular disorders through well funded research. Muscular Dystrophy Canada’s dedicated volunteers and staff across the country raise funds to enhance the lives of those affected by over 150 different kinds of neuromuscular disorders by continually working to provide ongoing support and resources. Muscular Dystrophy Canada’s mission is to enhance the lives of those affected with neuromuscular disorders by continually working to provide ongoing support and resources while relentlessly searching for a cure through well funded research. Today Muscular Dystrophy Canada has 38 chapters and two affiliates in communities across Canada, with thousands of volunteers helping them raise funds so they can provide services to tens of thousands of Canadians affected by neuromuscular disorders.
Muscular Dystrophy Canada delivers a variety of programs within 5 key areas of service: Education; Information; Advocacy; Support; and Equipment. If you or someone you know is affected by muscular dystrophy, they are here to help. Muscular Dystrophy Canada offers a wide range of services and programs. They are committed to improving the lives of people with neuromuscular disorders.
Here’s a few ways Muscular Dystrophy Canada is helping:
Services:
We all know wheelchairs, scooters, orthotics, hospital beds and other essential equipment can cost tens of thousands of dollars annually. Muscular Dystrophy Canada aims to reduce the burden on families by helping to provide funding for new equipment, as well as batteries and repairs. In some situations, they may also be able to provide equipment on loan.
Support:
You are not alone! Muscular Dystrophy Canada staff and volunteers are there to point you in the right direction. Their knowledgeable services staff can provide referrals and contact information to neuromuscular clinics, agencies and other community resources to find solutions to the day-to-day problems you face.
If you are a Canadian and have been diagnosis with a neuromuscular disorder, I encourage you to register with Muscular Dystrophy Canada. Registration is free of charge. And as a registered client, you will have access to all of their services.
Muscular Dystrophy Canada also offers up-to-date information about the different types of neuromuscular disorders and research that is helping to find effective cures and therapies. Since 1954 Muscular Dystrophy Canada has put more than $64 million towards research.
Friday, June 17, 2011
We Raised $14, 151 for Halton
Congratulations Halton Region Walk for Muscular Dystrophy!
The weather was a challenge on event day, but it couldn't stop the community from coming together to have a wonderful event!
Many thanks to the dedicated Halton Region Walk for Muscular Dystrophy Planning Committee and the volunteers who took part in making this event a great success. A special thank you to the Oakville Professional Fire Fighters for their support! See you Next Year 2012!!!
Thursday, May 19, 2011
Walking In The Rain for Muscular Dystrophy
The annual Walk for Muscular Dystrophy in Coronation Park Sunday drew hundreds of participants.
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Walking in the rain Walt Winge and his daughter Laura de Souza push the wheelchair of Winge's granddaughter and de Souza's niece, Louise Dean. Thank you everyone for a wonderful day. See you in 2012! We raised over $13,000 for the Region of Halton!!! |
Monday, May 16, 2011
Thank you Halton Region Walk for Muscular Dystrophy
Thanks to all of you for the tremendous support for the walkers, volunteers and the community supporters. We braced the cold, wind and rain to raise awareness for Muscular Dystrophy. The rainy weather did not dampen spirits. Here are a few pictures and more will be posted soon. Looking forward to seeing you Next Year 2012! We raised more than $13,000!!!
Pictures from 2nd Annual Halton Walk for Muscular Dystrophy Sunday, May 15, 2011 at Coronation Park-Oakville, Ontario
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In this photo: Julie Dean, Shanna Bernacki, Jodi Lariviere, Laura Lee, Julia Chernin, John Cussons, Diana D’Agostino - 2nd Halton Walk for Muscular Dystrophy 2011 Volunteer Committee- Missing from photo is Tyler Ward |
Friday, May 13, 2011
Walk for Muscular Dystrophy at Coronation
For most, dressing, walking up stars or making lunch don't require too much effort. For Halton resident Laura Lee to do those tasks however, she needs help.
In 1997, at age 11, Lee, now 25, was diagnosed with Charcot-Marie-Tooth Disease (CMT), a group of hereditary conditions marked by slowly progressive muscle weakness and atrophy (muscle wasting) in the feet, lower legs, hands and forearms.
Also called Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy, CMT is a disorder under the umbrella of neuromuscular disorders, which includes Muscular Dystrophy (MD).
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Walk for Muscular Dystrophy at Coronation. GETTING GOING FOR MUSCULAR DYSTROPHY: Participants are expected to take part in the second annual Walk for Muscular Dystrophy Sunday at Coronation Park. Oakville Beaver file photo |
While CMT symptoms may not be highly visible, Lee has taken her role as Halton Ambassador for Muscular Dystrophy Canada to heart to create as much awareness as possible for the region’s second annual Walk for Muscular Dystrophy, happening this weekend in Oakville, through her network, social media channels and by word of mouth.
“It’s all about that education and awareness for people — that’s still a big barrier we have,” said Lee.
While one in every 2,500 people are affected by CMT, she said, the problem in diagnosing it is that it can look like other diseases, like Muscular Dystrophy, so getting the appropriate tests is very important.
Lee was diagnosed with Type 1A CMT, the disorder’s most common form.
Before being officially diagnosed, however, doctors originally thought she had Chronic Inflammatory Demyelinating Polyneuropathy, a rare nerve swelling disease that can eventually cause the complete loss of sensation in the body.
The symptoms of CMT are generally “nerve damage, muscle loss, (and) problems walking,” Lee says. “Our hands can curl up a bit because there’s not the nerve support to keep them straight anymore… I myself use a wheelchair, which is common, (and) I have leg braces to support whatever walking (ability) I still have.”
While the wheelchair is how Lee manages to get around for the most part, she says from the year she was diagnosed to 2002, no one would have be able to tell that she was suffering from the degenerative disorder.
“It was gradual, but sudden at the same time,” Lee said. “It was about 2002 (when) my disease started to progress. Prior to that if you had looked at me, you wouldn’t have known that I had any condition at all, unless you watched me run or go up stairs… (That year) I went from walking independently to (using) a cane and then a wheelchair in about six months.”
Lee was asked this year by Muscular Dystrophy Canada to be the Halton Ambassador for the walk.
“For me it’s about hope… diseases like mine and MD (they) kind of fall under the radar, but there’s no reason we need to lose hope because of that,” she said. “The type of illness we have isn’t in the forefront in the media or mainstream at all. So by having these events, you look at all the people that come out and they’re saying, ‘We’re here to give you strength. We’re here to give you hope and support, that you’re not alone.’”
Halton will be one of 54 communities participating in the national walk, taking place on Sunday, May 15 at Oakville’s Coronation Park located at 1425 Lakeshore Rd. W. Although this will be the second year Halton participates, it will be the fourth year the event has taken place nationally.
Those interested in participating in the one-kilometre or 5k walks can still register online or in person on the day — there is no registration fee.
Registration begins at 10 a.m., followed by the walk at 11 a.m. Some other activities and prize distribution will take place afterwards, as well.
Last year’s inaugural event saw 100 people in attendance and raised more than $10,000 for Muscular Dystrophy Canada — Lee says she hopes both numbers will be surpassed Sunday.
For more information or to register, visit www.muscle.ca.
Saturday, May 7, 2011
Tyler Ward From The Halton Muscular Dystrophy Committee
Watch Tyler Ward, from the Halton Walk for Muscular Dystrophy Committee, during his interveiw on FYI - (Cogeco Channel 23) as he talk about the upcoming 2nd Annual Halton Walk for Muscular Dystrophy. He invites everyone to come out and join the walk.
Tyler says you can Walk, Roll or Run to raise funds for Muscular Dystrophy.
Sunday May 15th, 2011 at Coronation Park Oakville
Registration time: 10am
Walk begins at 11am
http://www.muscle.ca/ontario-nunavut/ways-to-give/fundraising-events/walk-for-muscular-dystrophy.htmlFriday, April 29, 2011
Playoff Beard To Help Raise Funds For Halton Walk For MD
Jason Bleakley is the late Rex Stephenson Jr.'s first cousin. For the next two weeks he is growing his "playoff beard" leading up to the walk on May 15th.
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| Jason Bleakley and Rex Stephenson Jr. |
Donate at Let's make Muscles Move!
Sunday May 15th, 2011 at Coronation Park Oakville
Registration time: 10am
Walk begins at 11am
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